Tag Archives: rarediseses

Multiple myeloma, rare blood cancer: Bruce Springsteen's wife's diagnosis spotlights the illness

Patti Scialfa, Bruce Springsteen’s wife and a member of the E Street Band, recently shared that she was diagnosed in 2018 with a type of blood cancer called multiple myeloma. She revealed her illness in the documentary “Road Diary: Bruce Springsteen and the E Street Band,” which premiered at the Toronto Film Festival on Sept. 8. The production gives a …

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Children swimming in Virginia lake hospitalized after E. coli, gastrointestinal illnesses

Health officials in Virginia are investigating a surge of brutal gastrointestinal illnesses reported in children who were at a popular lake over Memorial Day weekend, with a number of them ending up in a hospital. The Virginia Department of Health (VDH) says that some people who were in the water at Lake Anna have been diagnosed withEscherichia coli(E. coli) infections, …

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Charlotte the stingray not pregnant, has disease, says North Carolina aquarium: 'Truly sad'

A stingray called Charlotte who befuddled her aquarium team when she appeared to be pregnant without the presence of a male stingray is actually suffering from a rare reproductive disease, the group announced on Thursday, May 30. “We regret the delay of updates regarding Charlotte. This time was necessary to gather data and analyze lab and testing results,” said the …

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Lupus expert debunks 7 common myths about the autoimmune disease: ‘Not a death sentence’

Fatigue, pain, swelling, rashes and hair loss are just some of the symptoms that affect people with lupus, a chronic autoimmune disease in which the immune system attacks healthy tissue. Some 1.5 million Americans are living with lupus, with about 16,000 new cases each year, according to the Lupus Foundation of America, based in Washington, D.C. There are many myths …

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Disrupted sleep, plus nightmares could be linked to autoimmune diseases, experts say

Those who experience vivid nightmares and odd hallucinations might have an underlying autoimmune disease, a new study suggests. An international research team led by scientists at the University of Cambridge and King’s College London explored the potential link between nightmares and hallucinations and systemic autoimmune rheumatic diseases. The study, published in March in the journal eClinicalMedicine, included 676 people with …

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Second American contracts bird flu tied to dairy cows as CDC says risk of infection still low

The Centers for Disease Control and Prevention (CDC) announced Wednesday that a second H5N1 bird flu case has been identified by officials. A 55-year-old Michigan dairy worker became ill after working with H5N1-infected cattle, the CDC said in a press release. While an upper respiratory tract sample tested negative, a specimen from his eye confirmed the H5N1 bird flu infection. …

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Pennsylvania mom seeks ‘perfect match’ bone marrow donor to cure daughter’s rare disorder: ‘Crucial need’

A 10-year-old girl in Pennsylvania is in dire need of a bone marrow transplant — and her mother is on a mission to find the perfect match. Lani Walter suffers from a disease called DOCK8 deficiency (dedicator of cytokinesis 8 deficiency), an immunodeficiency syndrome that can cause recurrent, life-threatening infections. DOCK8 is very rare, with only 250 people worldwide currently …

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The girl who can’t smile: How a rare disorder became a young woman's ‘greatest gift’

Tayla Clement, 26, was born with a rare disorder that has made it impossible for her to smile — but she says she is grateful for it. Born and raised in New Zealand, Clement has Moebius syndrome, a neurological disease that affects one child out of every 50,000 to 500,000 born, research shows. Moebius occurs when a baby’s facial nerves …

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CDC warns of invasive bacterial outbreak amid spike in cases and fatality rates: 'Rare but severe'

An invasive bacterial infection is on the rise in the U.S., according to an alert from the Centers for Disease Control and Prevention (CDC). Cases of meningococcal disease, mainly caused by the bacteria Neisseria meningitidis, reached 422 last year, the highest annual number of cases reported since 2014, the agency stated in the alert. So far this year, 143 cases …

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Rare condition caused patient to see ‘demonic’ faces, says study on ‘visual disorder’

It sounds like the stuff of horror films — but for people who are afflicted with a rare disorder, it’s a terrifying reality. A condition called prosopometamorphopsia (PMO) causes facial features to appear distorted, according to researchers from Dartmouth College in Hanover, New Hampshire. A study published in The Lancet revealed that a 58-year-old man reported seeing faces as distorted …

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