Monday, February 26, 2024
HomelifestylePennsylvania parents honor their daughter who died of a rare genetic disease:...

Pennsylvania parents honor their daughter who died of a rare genetic disease: ‘Sweetest girl in the world’

A mother and father are doing everything they can to help other families avoid the sorrow they went through in 2019 — and they are doing it all in their daughter’s name.

Jessica and Dan Roomberg, from Lafayette Hill, Pennsylvania, launched the Magical Mila Foundation in honor of their daughter, Mila, who died from Neurofibromatosis (NF) type 1 when she was just over a year old.

When Mila was born on Sept. 16, 2017, the doctors discovered a heart murmur, which they said was not a concern and that it would go away within a year, Jessica Roomberg told Fox News Digital.

“She is the heartbeat of our family,” Dan Roomberg added.

To learn more about Mila’s story and about the Magical Mila Foundation, check out magicalmilafoundation.org.

For more Lifestyle articles, visit www.foxnews.com/lifestyle

Sydney Borchers is a lifestyle production assistant with Fox News Digital. 

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